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Austin, Texas, March 9, 2023

Video: Gene therapy and the promise for rare disease

| Nov 17, 2021 | California

Groundbreaking gene therapy treatments have tremendous potential to provide treatment to the around one in ten Americans living with rare diseases. But these game-changing therapies also bring with them new challenges, including how the individuals who need them most will get access to and be able to pay for these...[ Read More ]

5 Things Hawaii: Q&A w/ Jill Tokuda, Medicaid redetermination, Youth mental health

| Nov 4, 2021 | Hawaii

Recent weeks have seen a flurry of election announcements for statewide positions. This month's edition of "5 Things" features a Q&A with former State Senator Jill Tokuda who recently announced she will again run for lieutenant governor. We'll reach out to more candidates in the coming months for conversations on...[ Read More ]

5 Things Florida: Medicaid redetermination, COVID-19 treatment costs, Health care workforce

| Nov 3, 2021 | Florida

Another week of interim committee meetings kicked off on Monday in preparation for the 2022 legislative session. With session in mind, this edition of "5 Things" features some of the health policy conversations take place and legislation being filed ahead of January 11, 2022. As always, thanks for reading. If you...[ Read More ]

Registration for "5 Slides: Gene therapy and the promise for rare disease" now open!

| Nov 1, 2021 | California

Gene therapy has proven to be a promising treatment for rare diseases like muscular dystrophy. As these life-saving treatments enter the market, however, their high costs pose affordability challenges for individuals living with rare diseases.     In our upcoming virtual conversation, “5 Slides: Gene therapy and the promise for...[ Read More ]

5 Things Washington: Medicaid redetermination, COVID-19 treatment costs, Women & children's health report

| Oct 28, 2021 | Washington

We've been hard at work putting together the Topical Agenda for the 2022 Washington State of Reform Health Policy Conference coming up on January 6. We'll announce that agenda in the coming weeks, but if you already know that you want to join us, be sure to take advantage of the Early Bird...[ Read More ]

5 Slides: Gene therapy and rare disease treatment

| Oct 26, 2021 | Washington

Rare disease treatment and gene therapy were the topics of a State of Reform 5 Slides We’re Discussing panel.  Gene therapy is a form of treatment where genes are inserted into the cells of a patient, instead of relying on drugs or surgery. The therapy may be especially promising for...[ Read More ]