Bills to allow individualized investigational treatments for eligible patients and prohibit vaccine mandates in schools pass health committees
Soraya Marashi | Feb 10, 2022 | Arizona
5 Slides We're Discussing: Gene therapy and the promise for rare disease
Soraya Marashi | Jan 24, 2022 | Arizona
5 Things California: Gene therapy, Statewide HIE, Kaiser protests
Eli Kirshbaum | Nov 18, 2021 | California
Video: Gene therapy and the promise for rare disease
Eli Kirshbaum | Nov 17, 2021 | California
Groundbreaking gene therapy treatments have tremendous potential to provide treatment to the around one in ten Americans living with rare diseases. But these game-changing therapies also bring with them new challenges, including how the individuals who need them most will get access to and be able to pay for these
5 Things Hawaii: Q&A w/ Jill Tokuda, Medicaid redetermination, Youth mental health
Emily Boerger | Nov 4, 2021 | Hawaii
Recent weeks have seen a flurry of election announcements for statewide positions. This month's edition of "5 Things" features a Q&A with former State Senator Jill Tokuda who recently announced she will again run for lieutenant governor. We'll reach out to more candidates in the coming months for conversations on
5 Things Florida: Medicaid redetermination, COVID-19 treatment costs, Health care workforce
Emily Boerger | Nov 3, 2021 | Florida
Another week of interim committee meetings kicked off on Monday in preparation for the 2022 legislative session. With session in mind, this edition of "5 Things" features some of the health policy conversations take place and legislation being filed ahead of January 11, 2022. As always, thanks for reading. If you
Registration for "5 Slides: Gene therapy and the promise for rare disease" now open!
Eli Kirshbaum | Nov 1, 2021 | California
Gene therapy has proven to be a promising treatment for rare diseases like muscular dystrophy. As these life-saving treatments enter the market, however, their high costs pose affordability challenges for individuals living with rare diseases. In our upcoming virtual conversation, “5 Slides: Gene therapy and the promise for
5 Things Washington: Medicaid redetermination, COVID-19 treatment costs, Women & children's health report
Emily Boerger | Oct 28, 2021 | Washington
We've been hard at work putting together the Topical Agenda for the 2022 Washington State of Reform Health Policy Conference coming up on January 6. We'll announce that agenda in the coming weeks, but if you already know that you want to join us, be sure to take advantage of the Early Bird
5 Slides: Gene therapy and rare disease treatment
Aaron Kunkler | Oct 26, 2021 | Washington
Rare disease treatment and gene therapy were the topics of a State of Reform 5 Slides We’re Discussing panel. Gene therapy is a form of treatment where genes are inserted into the cells of a patient, instead of relying on drugs or surgery. The therapy may be especially promising for