Register
Upcoming Conference
Austin, Texas, March 9, 2023

Leadership Series: The future of gene therapy

| Oct 25, 2021 | Federal

Bhash Parasuraman, vice president of value and access for rare disease and internal medicine at Pfizer, joined State of Reform on Thursday for a conversation on the future of gene therapy.  As part of our virtual “Leadership Series,” Parasuraman discussed the outlook for gene therapy, the policies she’d like to...[ Read More ]

Patients with rare diseases face much higher health care costs

Aaron Kunkler | Oct 22, 2021 | Washington

A new study suggests that people with rare diseases face much higher health care costs than those without a rare disease.  The study was led by the National Institute of Health and published on Oct. 21. It found that over a 15 year period, the cost per patient per year...[ Read More ]